4/30/13

Hey guys, I'm not feeling well today (mainly GI stuff at the moment), but I thought I would share the link to my personal blog. My old one got hacked so I made a new one, but I don't think I ever updated with the link.

http://hislovegivesmewings.wordpress.com/

-Logan

I don't feel good....

...so I am going to keep this rather brief.


Like two Fridays ago I was hospitalized until last Tuesday due to that gastroparesis flare that I was talking about. I just got fluids the whole time because I was not eating much at all. There was one day where I did not eat period. They did x-rays and it showed that I was really backed up, so my intestines were not working either. I had not went to the bathroom for about a week. After a bunch of unpleasant things, I got to go home. Thank the Lord that my nausea decreased significantly. I know that my stomach is not working to the best of its capabilities, but I am not as nauseous. I am thankful that I am about to get food down now.

Since I have been out of the hospital, I have been beyond my normal POTSy. I assume that my autonomic system has decided to lay off of my stomach and to attack my heart. I'd take heart symptoms over GI problems anyday so I suppose I will be okay. I haven't fainted yet!! That is always a plus! :)


I hope everyone is having a good week!

God bless xxx
Cheyanne

I'm Not Good With Titles!

Hey lovelies! Sorry I missed posting! I come to you playing Mario Kart (writing this in between live races- ha).(Okay, that didn't work so well...)

I'll start of in response to you other gals:

Logan: I'm glad you are having ups with some of your symptoms but sorry about the downs with others :(
I know what you mean about the sensations like something is crawling on you or things of the like. I get sensations like droplets of water are falling on me.

Cheyanne: Congrats on college and driving! Whoop! Sorry though that you are dealing with a worsening of symptoms! To answer your question, Have any of you had any experience similar to mine regarding the sensory overload? Does it mess your body up for a long period of time like this? I wish I had an answer more helpful, but usually for me, my sensitivity comes in spurts, and the symptoms I get are reactions indeed to the sensitivity, but they usually don't last longer than the sensitivity.

Right now I am dealing with awful acid reflux, the kind that makes you feel like your heart is trying to kill you or something. However, praise God, our doctors office had some Nexium samples, so I'm going to start on those tonight.

I've been exercising a lot for almost a week now as well as helping my mom with daycare for most of the day (that I'm awake- ha.). I've been really enjoying it. I don't know that I'll do much today because this acid reflux is horrible (I'm in my recliner right now). It drains my energy. Yuck.

I think that is all for now. Until next time...
~Hannah

Hey Cheyanne

Hey girlie, I get the sensory overload too. I'm sensitive to sound, temperature, and touch everyday, and I'm often sensitive to light and smells too. Its pretty much kept me home bound for the last 4 years, and although my sensitivity has been a little better the last say.. month and a half... I still have to protect myself when I'm out of the house, and sometimes I can't go out at all. Especially if I have a migraine and my sensitivity is extreme that day, or its too hot/too cold... something beyond my control where I can't protect myself.
Miranda and Hannah will remember this.. 2 years ago me and my dad drove down to visit them. I got very sick from sensory overload the day before we left, and the trip was full of sensory overload too. For about 2 weeks I was pretty sick and I had problems regulating my body temperature. I had to be very careful how I dressed, if I tried to use a blanket or wear too much clothing I would get a fever. After we got home and I was able to rest with some peace and quiet for a week, my body recovered and things pretty much went back to normal.
I don't think you're crazy, its possible that sensory overload worsened your symptoms, or it could have just been a coincidence.
- Logan.

It's Cheyanne! (sorry I forgot last time I was supposed to post)

I was doing pretty well for the past few months...aside from fatigue and the usual Ehlers Danlos pain of course! I have actually been trying to have a little bit of a life. So far it is working out decently. I am continuing to go to the high school for one period everyday and going to the college on Tuesdays and Thursdays. The rest I do online. Today I got my drivers license. Yay! I hardly ever drive because by the time I get to where I am going, I am too exhausted/in pain to get myself back home. Regardless, it is a nice accomplishment even if I hardly ever get to drive. 

I am currently not doing as well. My stomach has decided not to work. It is REALLY bad and close to 2010 all over again. 2010 was the worst and when I got down to 90 pounds. What is odd is that right before this flare began (I mean literally...right before) I had walked into this shoe store at the mall and got a sensory overload. Between the lighting and carpet and walls it wacked me out. My head felt funny and I couldn't walk straight. As soon as I got out of the store my stomach started hurting and I got super nauseous. Ever since then, my stomach has been bad. I am almost scared to bring that up to a doctor because they will think I am a complete looney tune. 

Hannah: What is your favorite "pick up" beverage? What hobbies do you have?

Hmm...when I am POTSy I usually gravitate to Powerade and any other time I like water or Diet Coke. :) As far as hobbies go, I like to blog/write or listen to music. I am constantly listening to music. 

My Question: Have any of you had any experienced similar to mine regarding the sensory overload? Does it mess your body up for a long period of time like this?

I hope that everyone is doing well! God bless. xx

Cheyanne