Tuesday, February 26, 2013

Hidden Hearts Alliance

Check out this website guys, its awesome! 


"Mik's Hidden Hearts Alliance mission is to offer hope through empowerment and community awareness to both hospitalized and homebound teens and their families who suffer from Dysautonomia and other life-changing hidden chronic illnesses."  

- Hope you all are doing ok. Jesus loves you!

Tuesday, February 5, 2013

Book Addict

I'll keep this short since I'm really not feeling good today. I really only have a few good "usable" hours early in the day where I'm up to doing chores, going to a doctor's appointment, ect. I usually get up in the morning sometime between 10 am and noon (due to being up all night with insomnia), and then I'm sick by mid or late afternoon. After that I'm pretty much useless lol. Sometimes I just wake up feeling sick too, on those days I don't even get a few good hours in the morning. 
In spite of that I'm trying really hard to get my room(s) cleaned up and organized. (And keep them that way.) And I want to start a new online course for school too called "Study Skills." I should be able to take it as an elective, and based on the course description I'm hoping it might help me find some ways to better manage my memory problems. Or at least get through school work faster maybe.
On the same note, I've had several Dysautonomia friends recommend doing "mental exercise" everyday to help brain fog and memory problems, like reading, schoolwork, playing computer games, doing crossword puzzles, whatever. I've just been trying reading alot the last few months, and when I do it daily I do notice that in general my thoughts aren't quite as sluggish! I haven't seen any overall improvement in my memory, or in my brain fog itself, but I think that on top of those issues.. over the last few years my mind has kind of atrophied a little bit from being homebound all the time. Like when I got sick I stopped going to school, I stopped reading all the time. I stopped playing flute and only I toyed with other instruments. I couldn't really be social or interact with people much. And then there are all the little things like not doing art or sports, not listening to music too much, or being able to even look at something that's too colorful or complicated, because of sound, light, and visual sensitivities. Do you guys get it? My memory problems and brain fog started happening right away when I got sick, but over the last few years I think my mind has also atrophied a little just from being homebound and isolated from all the stimulus and "exercise" it used to get every day. 
I think I'm just going to stick with reading for now and see how it goes.

Hannah: my favorite part of winter is probably the snow, it can be so beautiful! 

 John 16:33
 These things I have spoken to you, that in Me you may have peace. In the world you will have tribulation; but be of good cheer, I have overcome the world.”