Wednesday, August 22, 2012

I hit my head.

I had this big long post planned out. I actually had a lot to say since I forgot to post last week, but I forgot most of it. Hahaha. I actually just fainted a few minutes ago. It was the first time in two years. ): Bummer. I hit my head on the tile and I am beginning to feel it now. I was not expecting to faint. Usually I'll black out and keep on walking. This time was different. I was in the hallway when everything began to go dark. I held onto the wall and began to tremor. Next thing I know, I'm on the floor. The whole thing kind of frightened me since I am not used to actually losing consciousness. There is supposed to be a hurricane coming, so the weather has been lousy. Pressure changes usually wack my blood pressure out. I think that is the culprit.

School started on Monday. The high school class seems like it will be much more pleasant than it was last school year. The college class was a wake up call. I can already tell it is different from high school. I was expecting to have work on the first day, but I did not. Tomorrow I go back and I am supposed to be writing an essay.

Question: How has dysautonomia influenced your schooling?
I am not able to do quite as much as a normal person would. I can only go to school for one period. I am dual enrolling, so I also take another class at the college. The remainder of my classes are online. Most would probably disagree, but I feel that I can actually get better grades now! I have lost the majority of my friends, so I really have nothing else to divert most of my attention to.

I have noticed that nobody has been posting recently! I hope everybody is okay.

God bless,

Saturday, August 18, 2012


But I will learn to breathe this ugliness you see,
So we can both be there and we can both share the dark.
And in our honesty, together we will rise,
Out of our nightminds, and into the light
At the end of the fight...

Song lyrics by Missy Higgins, just in case you dont understand the title.

Sorry guys, I have been so MIA. As most of you guys know, I haven't been doing that well. I have been fainting, and fainting, and fainting, and doing homework (just to spice things up). I have swamped with homework.

I had to drop a subject which I am really devasted about because I wasn't well enough to keep up and physically get there. Groan. Moan. Blah.

I really don't want to post. I honestly hate writing "down" styled posts and we arent doing that great as a group so I dont want to bum you guys out.

Question: how has dysautonomia influenced your schooling?

Thursday, August 9, 2012

It's Cheyanne posting late!

Sorry, I forgot yesterday. Nothing interesting has been happening with me. I have been trying to finish my online classes before school begins again. Today I went to the cardiologist. The atenolol is working fabulously! I love it. :) My other issues like my irregular beats and chest pain have not cleared up. I am sure they are not POTS episodes because they are too consistent. He put a holter monitor on. We'll see what becomes of that. I don't want him to find anything wrong, but I don't want him to find nothing and think I am faking it all or something. I know that y'all know how that goes. They had ran out of holters, so we killed time at the mall. My mom and I have been on the hunt for shoes. My lovely Marfanoid body causes my feet to be extremely narrow and long for a person of my size. Shoes in narrow sizes are not very prevalent. I wound up buying a pair of boots. They weren't narrow, but if I lace them up enough and put the insoles in they fit good enough. They also come just above my ankles. That helps a ton because they support me through there since my ankles are floppy.

My appointment at Shands got moved up! We will discuss the NJ then. I will probably have it for about a month if he agrees. The whole point of it will be to see if I would want a permanent J tube. I don't know how I would feel with a permanent one, but at least I will know that the option is always available to me.

I cannot believe that school starts in less than two weeks. That is scary. I do not want to go back to the high school. Ugh. I'm praying that going to the college for another class will be a positive experience for me. I'll at least get a change of scenery. I hope my body can handle two classes. The college class is only on Tuesdays and Thursdays, which makes it easier.

My Question: What do you all want to do after high school/college? 
It's okay if you don't have an answer. I just cannot think of a question, but I want to ask one. :) I want to be a music journalist. They are the people who interview the musicians, write critiques, etc. Or maybe even a connective tissue geneticist who deals with Ehlers Danlos, Marfans, Loeys-Dietz, etc. I am sick of doctors, so I don't know if I could ever go into the medical field. 

I hope y'all are feeling okay. God bless xx

Wednesday, August 8, 2012

Hey late poster alert.

Its meeeeee. I was going to post yesterday.. and obviously didn't do it. O_O
Not much has changed, I'm just trying to make the best of summer : ). It occurred to me the other day that we all have silly things that we do for fun, even though we are not feeling well. For me painting my nails is a big one : ) I don't know why, its small, its stupid, but it makes me smile to have my nails painted obnoxious colors and patterns.

Oh and when I'm feeling up to it and the weather is tolerable just sitting outside and enjoying the grass and the sky and the sunshine can completely change my mood.

Rhianne: no I have not been watching the Olympics.

Cheyanne - my results : ) - INFJ - "Author". Strong drive and enjoyment to help others. Complex personality. 1.5% of total population. I found the quiz really interesting, I never had to answer questions like that before, and I realized that even though I tend to listen to my thoughts more than my feelings, I often value compassion more than competence, and feelings more than thoughts in general.  That's just weird. lol 

Hannah - Sometimes I struggle with speech problems, not so much any more but I still have my days where I trip over my words like crazy, I also sometimes have a hard time just getting my thoughts out in any way that makes sense and I probably come off so weird to others, like Rhianne said I sometimes must make awful first impressions on the rare occasions i get to make them lol.