Technical difficulties

Hey my wonderful friends! I just made a whole lovely video for you guys but I did something on iMovie trying to upload and I accidentally deleted it. I guess that it wasn't meant to be, so in advance I shall apologies for my rambling as I have been awake since 4:30am? Watching the Olympics opening ceremony.

I guess that shall be my question: Do you guys watch the Olympics?

My week has been kind of crap compared to last week. However, I ran! For three minutes! Yay! I actually have a good level of fitness, the only thing that stops me is the pots monster. I have been trying to do wiifit every day (or Another form of exercise), to help improve my standing tolerance(so far not working as I had three faints this week! And not hot guys caught me!)

Anyway, moving on. School has been going okay for me. It has been a bit hard with my brainfog but I am actually doing good in my classes for the first time in two years. The other day in Maths I got a question right that nobody else did. Even though I have to work a lot harder then everyone else (unlike everyone else I donthave the luxury of part time jobs or hanging out with friends often) but Atleast the hard work is paying off.

In terms of the other aspects of my life, I got to hang out with my friends on Wednesday after extension but I wish I could do more instead of sit at home and do nothing.

Anyway munckins, I shall wrap up these posts with the questions:

Cheyanne: my personality Type is ETSJ which describes me very well.

Hannah: YES! I have horrible communication issues I swear I must make a terrible impression of myself. I lose thought midsentene and all the other things you mentioned.

Love you forever and always,
Rhianne

More GI issues.

My stomach is kicking my butt at the moment. Hahaha. It is back to its normal slow self now. I've been so nauseous and I keep getting the hiccups (gastroparesis thing). On a good day I get about 1500 calories a day, which is not too bad. I am eating enough to maintain a weight between 99 and 101 pounds. My problem is that everything makes me sick, so my diet is pretty much the same day after day. I do not get all of the food groups in. I do not get enough protein and we discovered months ago that my body is taking from the muscle I already have. I am peeing out my muscle. Over the past two years my energy levels have declined tremendously. I know most of that stems from being malnourished. I am not getting the nourishment I need. It is nearly impossible when everything makes me sick, I don't digest meat or raw veggies well, and I have SOOO many other diet restrictions.

A couple weeks ago I had joined this Gastroparesis teen group on Facebook. Most of the girls on there have feeding tubes. I have talked to them about it and they said that they do not regret getting their tubes at all. They still have nausea and other symptoms, but they are able to have lives. They can go to school and hold down a job. Most of them do have underlying conditions as well. That has made me consider getting a GJ tube. If it could help me live a mostly normal life, then that would be great! My POTS could improve also because I would be able to get in enough fluids and sodium. I would still have all of my EDS issues and other dysautonomia issues, but my GI issues are and have always been the worst. I wish I could tell how much I could benefit from it without undergoing the major surgery. I know that the option is always open, even if I don't decide anytime soon. 

Miranda's Question: When (or if) you get blood pooling do your knees hurt with it?
Not really. It usually just hurts below my knees. Oh, and congrats on your college entrance exam! :)

Rhianne's Question: What TV shows do you watch?I watch: Pretty Little Liars, Teen Mom, and Switched at Birth.

I am glad your headaches disappeared! 

Hannah's Question: Do you have communication issues?
No, I wouldn't say I do. I have never been a big talker, and I am not around people all of the time like I used to be. I really don't communicate with very many people except my family and my boyfriend. I do forget what I was going to say quite often, but I don't stutter or any of that. 

I hope you are feeling better from the stomach virus!

Logan: You didn't have a question. I am sorry you aren't feeling well! The picture of the sky from your new house is beautiful. :)

My question: I had a question all planned out, but I had to drive to the store and now I forgot. Um this isn't what I was originally going to ask but...one of my tumblr friends is doing this poll to see if there is a personality link between dysautonomia. Here is the quiz, so if you want to take it and post your results then I will let her know. :) 

My result: ISFJ - “Conservator”. Desires to be of service and to minister to individual needs - very loyal. 13.8% of total population.

Have a great week. God bless!

-Cheyanne

Shooting Stars

I'll keep this really short, not feeling well.
Christine has asked me to post for her on Tuesdays for the time being, she is really busy at the moment, and keeps forgetting to blog in all the chaos. : P
We have moved to the new house, and it is wonderful, especially the sky. It is so open, you can see so much of it. I tend to go camera happy.

I was up all last night looking at the stars : ) it was amazing, you could see the Milky Way, and all the planets were so bright. And of course there were shooting stars : ). I didn't sleep at all, and in the morning I expected to fall asleep but I didn't. In fact i felt great, but then i tried to go outside later in the day.. and between the lack of sleep and sensory overload i just crashed and was so sick i couldn't even sit up. I eventually fell asleep and woke up feeling a bit better, but it wasn't pleasant : P
I'm too out of it for questions, I'm really sorry. I'll talk to you guys later!
-Logan

:)

Hey lovelies! :) sorry I'm not super enthusiastic I was feeling zombie-like lol. Here's my video :) http://www.youtube.com/watch?v=eiTz9uwdvZA&feature=youtube_gdata_player

~Hannah

An okayish week...long overdue

Hey guys I actually haven't had that bad a week from memory. After being taken of my 30mg of flouxentine and being put back on 20mg my headaches have disappeared leaving me to think that the culprit was the medicine. How come drugs most of the time cause more harm then good?

I am doing this post on a study break, I have heaps of schoolwork to do, mostly a Biology assignment on Australian mega fauna. You guys would probably find my report highly amusing! I want to get it done today, so hopefully, fingers crossed, I can hang out with friends tomorrow!

It was first week back and I can't believe I only have 10 weeks left before I start Year 12. Ah! Scary!

I had one day off because I couldn't really get up and go. I also fainted on Thursday which really, truly and honestly sucked! My whole year was along that hallway because we are all scheduled to have maths at the same time and I swear everyone saw me go down, embarrassing right? Luckily my friends helped me and this really nice guy helped me get to sickbay.

Anyway I need to finish this report so I shall answer the questions so I can be gone.

Do you have bradycardia? Yeah I have caught my pulse in the 40s which is Absoulutely scary! I have no advice other then stand up.

Do you eat meat and how do you tolerate it? I tolerate unprocessed meat fine however things like sausages, parties etc seem to mess me up a tad.

Do your knees hurt when you have blood pooling? Not that I have noticed.

My question is what tv shows do you watch?
At the moment I watch the news and occasionally Home and Away, don't judge.

Rhianne