I am FINALLY posting. I kind of took a little break being that nobody else is really posting. I have been doing okay, I guess. Last week was beyond stressful with finals and such. My grades came in today and I got an A in my first college class! Yay!! My dysautonomia symptoms have been rather calm, except for a horrible episode I had a few nights ago. All of a sudden my blood pressure shot up along with my pulse. The highest I caught it was was 170. If it got any higher, my mom said I needed to go to the ER for fluids and tests. I felt like I was going to die to be completely honest. Hahaha! I had not had a bad episode since being on my heart medication.
My GI issues are still present. The last GI doctor I saw was a complete joke. At the beginning of the appointment he was telling me that I need a therapist and that I did not have gastroparesis and that had an eating disorder. The funny thing is that his facility diagnosed me originally. Weird. Towards the end I needed an NJ tube! Lets just say that I never went back to see him. I don't know what changed his mind. I saw my PCP for an opinion on the NJ. Some labs were ran and they were all fine with the exception of my iron (it's always bad). That is only by the grace of God because I hardly eat anything. When I do, it usually isn't very nutritious. Anyways, I am losing more weight now so we scheduled an appointment with my GI doctor closer to home. I am wanting her to do a smart pill test. I have heard it is more accurate than the gastric emptying scan when diagnosing gastroparesis. I am kind of excited to see her because it has been awhile. On the other hand, I don't want to go.
Since the last time I posted I have gotten knee braces! They help tremendously. :) I am so happy. My birthday is coming up and I can actually do something that involved lots of walking. The orthopedist said that I am hyperextending my knees and aggravating all of the tendons in that area. He ordered the braces to help with that. I am also in the process of getting fitted for ring splints. The joints in my fingers are not wanting to stay in place.
Logan: I am happy to read that you are liking your tube and that the surgery did not worsen any other symptoms!
Hannah: How is the school going? Learning Hebrew sounds amazing! I wish you could teach me to crochet. :) It seems like fun to do when feeling ill. I am terrible when it comes to crafty things. How do you manage Christmas shopping with your Dys? My dysautonomia usually doesn't affect me all that much (except for fatigue) when shopping (most of the time lol). I make sure I am prepared with fluids and compression hose because heart problems always tend to come out of the blue for me. Joint pain and other EDS stuff is the big thing for me that makes shopping hard.