Tuesday, November 8, 2011
Sunday, November 6, 2011
Pinky Tremor
Hiii girls!
I have been rather absent lately and for that I apologize.
I have been feeling a little under the weather this weekend.
EXTREMELY tired. Not like the tired
I get these weird pinky tremors (I guess you can call it). It only happens on my left side and my pink will just shake uncontrollably. I took a video of my pink doing this that I might post later so you all can get a better idea of what I'm talking about. If I lay it flat on the ground, it stops. I still feel an odd sensation but it wont tremor. If I pick up my hand or move my hand upwards, it starts shaking like crazy again :/
Weird.
Do any of you experience this?
This happens off and on but has been something that has been occuring quite frequently in the past year. I also noticed that typically, whenever something happens, it always occurs on my left side.
Do any of you experience this or things happening particularly to ONE side?
***********
Francesca: I haven't gone trick or treating since I was in 6th grade :/
Miranda: I have horrible trouble with my hair. I left a comment on your post about it as well. I'm sorry your going through that!
Hope everyone had a good week & if your in the US, enjoyed your extra hour to the day!
Take care,
xoxo
Thursday, November 3, 2011
Field Trip Tomorrow!!
Tomorrow I'll be going on my first school field trip!! We're going to the Newseum and it seems really cool. I'm not sure how I'm going to be with all the walking, but apparently they have a really cool glass elevator. I'm also sick with a really bad head cold and because of POTS I don't think it's safe to take any kind of medicine (pretty much all OTC) that can mess up my blood pressure anymore.
Since it's been so cold recently, my joints have been aching a lot. But I'd much rather have aching joints then have really bad blood pooling from it being really hot outside. Earlier this week we got 5 inches of snow where Hannah and I live. We had no TV/Internet for almost two days, so I was extremely bored and slept almost the whole time :)
I don't have any more important updates, so onto the questions!
Cheyanne: My stomach does almost the same as yours!! But it happens in almost never ending cycles.
Logan: I am so happy that you get fluids and you found some good protein! All of my electrolytes/potassium and such are always wonky, but I can never find some kind of drink or powder that doesn't make me sick.
Francessa: I don't go Trick or Treating and I haven't since I was like 9. I actually really don't like Halloween.
Hannah: You didn't have a question either but I wanted to thank you for the offer :) I use EVOO for my face sometimes but I add in a bit of fresh coffee grounds.
My Question: Does your hair fall out? For the past 2-ish years my hair has been falling out in huge wads, yet I still have pretty thick and long hair.
Since it's been so cold recently, my joints have been aching a lot. But I'd much rather have aching joints then have really bad blood pooling from it being really hot outside. Earlier this week we got 5 inches of snow where Hannah and I live. We had no TV/Internet for almost two days, so I was extremely bored and slept almost the whole time :)
I don't have any more important updates, so onto the questions!
Cheyanne: My stomach does almost the same as yours!! But it happens in almost never ending cycles.
Logan: I am so happy that you get fluids and you found some good protein! All of my electrolytes/potassium and such are always wonky, but I can never find some kind of drink or powder that doesn't make me sick.
Francessa: I don't go Trick or Treating and I haven't since I was like 9. I actually really don't like Halloween.
Hannah: You didn't have a question either but I wanted to thank you for the offer :) I use EVOO for my face sometimes but I add in a bit of fresh coffee grounds.
My Question: Does your hair fall out? For the past 2-ish years my hair has been falling out in huge wads, yet I still have pretty thick and long hair.
Bis zum nächstes Mal,
I am late on posting again, so sorry!
I was having a rough time last night and I couldn't find anybody online to sub for me. My stomach issues have declined in the past week, and so has my appetite! I've already lost 2 pounds in a week from not wanting to eat. I just do not feel hungry and when I put food to my mouth I get extremely queasy. I pray this does not end how it almost ended last time. If this continues a couple more weeks then hopefully I can get on the same medication that jump started my stomach before when my gastroparesis had started. The whole process is confusing. It all began with dumping...my stomach was really fast and every time I would eat it would immediately come right back out. A couple months after that I had severe gastroparesis and my stomach wasn't working much at all. Since then it has improved, but now it appears to be not working so well again.
School has been a bit stressful this week. I have so much work due on all different days and I cannot take the textbook home so I was freaking out a bit about that in class today. One benefit of only going to school one period like I do is that I feel like I can focus more on my classes more...except on my brain fog days.
Tuesday I had my first real aquatic physical therapy session! It went well. The following day I was not sore at all, which was a big shocker. Other than that nothing new is really happening with me. :)
Miranda's Question: What is your favorite quote/Bible verse that you find inspiring when you do not feel well?
Francessca: I am glad you found something that helps a bit with the EDS pain!
Logan: What is the protein shot called? I saw a nutritionist and she told me I was not getting nearly enough protein. It is nearly impossible for me to get it all through my diet. My blood work is showing issues because I am not getting enough protein.
God bless!
-Cheyanne
School has been a bit stressful this week. I have so much work due on all different days and I cannot take the textbook home so I was freaking out a bit about that in class today. One benefit of only going to school one period like I do is that I feel like I can focus more on my classes more...except on my brain fog days.
Tuesday I had my first real aquatic physical therapy session! It went well. The following day I was not sore at all, which was a big shocker. Other than that nothing new is really happening with me. :)
Miranda's Question: What is your favorite quote/Bible verse that you find inspiring when you do not feel well?
- Psalm 107:20 He sent forth his word and he healed them; he rescued them from the grave.
- I found this on the internet the other day and loved it: "Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable with it, but I've been sick for years. I cannot be miserable all of the time. In fact, I work hard at not being miserable. So if you're talking to me and I sound happy, it means I'm happy. That's all. I may be tired. I may be in pain. I may be sicker than ever. Please don't say, "Oh you're sounding better." I am not sounding better. I am sounding happy."
Francessca: I am glad you found something that helps a bit with the EDS pain!
Logan: What is the protein shot called? I saw a nutritionist and she told me I was not getting nearly enough protein. It is nearly impossible for me to get it all through my diet. My blood work is showing issues because I am not getting enough protein.
God bless!
-Cheyanne
Wednesday, November 2, 2011
I'll Make This Quick
I am really tired and not feeling good so I will keep this short. My primary doctor agreed to more iv fluids, for the next 3 weeks! I increased my meds for sensitivity (which yes are really, really, helping)! And we talked about having me hospitalized for my GI problems, but we have no idea when or IF that will happen, so I'm not even going to worry about it at the moment lol.
My joints have gotten much worse this week, right now I have both wrists, both knees, and both ankles wrapped up, if I don't they hurt, and crack all the time, and I feel very unsteady like my joints are going to give out on me. I feel like an old lady, but I really can't complain, I know there are girls with joints problems out there worse than me.
Anxiety has been kicking my butt too, but I don't think its the kind caused by Dysautonomia, I think its just cabin fever related you know?
I can only remember 2 questions... does my heart rate go all over the place? With meds and physical therapy I'm doing pretty well. The highest we have ever caught me was 133. I get uncomfortable when my heart rate is even 100 when I'm resting, and I know most of you girls with POTS get heart rates way over 133. I can't imagine what getting heart rates of 160 or 180 or something must feel like!
What is your favorite Bible verse to read when you don't feel well
Isaiah 58:11.
- Logan
My joints have gotten much worse this week, right now I have both wrists, both knees, and both ankles wrapped up, if I don't they hurt, and crack all the time, and I feel very unsteady like my joints are going to give out on me. I feel like an old lady, but I really can't complain, I know there are girls with joints problems out there worse than me.
Anxiety has been kicking my butt too, but I don't think its the kind caused by Dysautonomia, I think its just cabin fever related you know?
I can only remember 2 questions... does my heart rate go all over the place? With meds and physical therapy I'm doing pretty well. The highest we have ever caught me was 133. I get uncomfortable when my heart rate is even 100 when I'm resting, and I know most of you girls with POTS get heart rates way over 133. I can't imagine what getting heart rates of 160 or 180 or something must feel like!
What is your favorite Bible verse to read when you don't feel well
Isaiah 58:11.
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