So guys, as this title suggests I am about to launch into more tests. I know I am getting a make shift tilt table test tomorrow at my doctors.
The reason:
FAINTING
At school....
In public...
Scaring people...
And usually injuring myself
My parents, my friends and my teachers are all worried I am going to "die" somewhere. Ie, collapse down some stairs and spilt my head open. I have fainted at school twice this week, Wednesday and yesterday (which was Monday in Australia). The joys of being a teenpotsy.
I think I have a bruise on my bottom from where I fainted yesterday. Argh! Rah! Blah!
Wednesday when I fainted everyone was really nice. Two guys offered to carry me and my friends sat on the ground with me so I didn't look so awkward. The deputy came and asked how I was and my drama teacher came and saw how I was.
Yesterday, I was walking to class alone. I fainted and I got yelled at when I went to stand back up. I got told I needed to see the first aid person and stuff. I was like, ergh! This is normal. The teacher yelled at me and said fainting wasn't normal and blah blah blah. I just told her I am going to Maths, have a good day, and went to class.
So tomorrow I have a doctors appointment, cheers to being a lab rat.
So my question for this week is: do you sometimes feel better after a faint?
Yesterday when I fainted I felt sick but then afterwards I felt so much better.
Anyway, that is my potsy week for you. I hope yours was better then mine. The definate highlight (well besides giving three minutes of my english speech before getting dizzy) was skyping with Logan and my brother comming in and asking about the pots in her brain.
Now onto the questions.
Now sorry I need to finish this post up and do my homework so I am just answering the questions.
Do y'all know any boys like us? Yeah I met a boy with bad CFS and headaches when I was in the hospital. I also know a boy with POTS.
What is your favoUrite coloUr? Yes in Australia both words have a u in them and I felt the urge to correct that. I like blue and green to be honest.
Do any of you have narrow pulse pressures (the difference between your top number and bottom number... it should always be around 35-40) and does your diastolic (bottom number) ever get really high? I have no idea. I sometimes have high BP though.
Bye for now
-Rhianne
Showing posts with label school. Show all posts
Showing posts with label school. Show all posts
Tuesday, March 20, 2012
Tuesday, February 7, 2012
Getting myself some education.
I will start with the posts before launching onto my week. (BTW, what do you guys think of the new pretty layout? Tell me if you want anything to change).
Cheyanne: I related when everyone else was sick and you just thought your Gastroparesis was acting up. I think I've done the same in the past.
You asked what is the highest you know your heartrate has been? I don't know where Mum put my medical folder so I can't let at stress tests, halter monitors and stuff. I have seen it on my hospital charts in the 240s though, when I have been really unwell and they have done posturals. 240s is just ridicolous.
Hannah: what is your favourite i'm sick but need to get out of the house activity? Playing the backyard with the dogs. :) does the backyard count as being out of the house?
My question: Do you have a scale you rate days on?
I try to keep track of how many A (normal person) B (slightly strange but really good) C (typical day) D (Bad POTS day) E (ARGH! I HATE MY LIFE! I CAN"T WALK! MY LIFE IS OVER). I haven't had a E day in ages, I am bouncing between Bs and Cs at the moment which is okay.
My week is that on Wednesday I went downtown with my friends (I only have two periods on Wednesday). They had all you can eat pancakes and I just had a milkshake. We went via the toyshop and the library. Extension English was good that day!
Thursday, can't remember really what I did. On Friday my Dad was my casual teacher for double biology and I counted 3794 grains of rice with my friend. I hate you Dad! Kidding but I am not letting you live that down.
Saturday, my friend was having a sleep over because one of my friends is leaving school to do a course in hospality. So there was a going away party. I managed to go for a few hours but it was hard.
Sunday, I helped clean out the garage a bit and did some homework. The usual.
Yesterday, I went to school, then I went via my friend's house and saw all her puppies they are gorgeous. I love dogs. :) Then I went to the gym, where I worked out and got fit.
Today, I went to the library after school then hung out with my friends (one who was on her lunch break).
Tomorrow is Wednesday again so I only have two periods, I will probably go to my friend's house and swim his pool with some of my other friends. And we will probs get milkshakes. I love milkshakes haha.
Wait I almost forgot, last Friday I managed to do an obstacle course in Drama BLINDFOLDED. I was being helped by my teacher and my friend but I still managed to do it. I only sorta tripped once.
LOGAN! YOU BETTER POST TOMORROW! (btw my brother saw the video of you putting the tube down your throat and thought it was a magic trick. lol.)
Cheyanne: I related when everyone else was sick and you just thought your Gastroparesis was acting up. I think I've done the same in the past.
You asked what is the highest you know your heartrate has been? I don't know where Mum put my medical folder so I can't let at stress tests, halter monitors and stuff. I have seen it on my hospital charts in the 240s though, when I have been really unwell and they have done posturals. 240s is just ridicolous.
Hannah: what is your favourite i'm sick but need to get out of the house activity? Playing the backyard with the dogs. :) does the backyard count as being out of the house?
My question: Do you have a scale you rate days on?
I try to keep track of how many A (normal person) B (slightly strange but really good) C (typical day) D (Bad POTS day) E (ARGH! I HATE MY LIFE! I CAN"T WALK! MY LIFE IS OVER). I haven't had a E day in ages, I am bouncing between Bs and Cs at the moment which is okay.
My week is that on Wednesday I went downtown with my friends (I only have two periods on Wednesday). They had all you can eat pancakes and I just had a milkshake. We went via the toyshop and the library. Extension English was good that day!
Thursday, can't remember really what I did. On Friday my Dad was my casual teacher for double biology and I counted 3794 grains of rice with my friend. I hate you Dad! Kidding but I am not letting you live that down.
Saturday, my friend was having a sleep over because one of my friends is leaving school to do a course in hospality. So there was a going away party. I managed to go for a few hours but it was hard.
Sunday, I helped clean out the garage a bit and did some homework. The usual.
Yesterday, I went to school, then I went via my friend's house and saw all her puppies they are gorgeous. I love dogs. :) Then I went to the gym, where I worked out and got fit.
Today, I went to the library after school then hung out with my friends (one who was on her lunch break).
Tomorrow is Wednesday again so I only have two periods, I will probably go to my friend's house and swim his pool with some of my other friends. And we will probs get milkshakes. I love milkshakes haha.
Wait I almost forgot, last Friday I managed to do an obstacle course in Drama BLINDFOLDED. I was being helped by my teacher and my friend but I still managed to do it. I only sorta tripped once.
LOGAN! YOU BETTER POST TOMORROW! (btw my brother saw the video of you putting the tube down your throat and thought it was a magic trick. lol.)
Friday, February 3, 2012
Happy Friday!
Hey peeps! Hannah here,
There are some new things happening for me! I am enrolled in the online School of Biblical Evangelism (see livingwaters.com), If you've ever seen Way of the Master with Kirk Cameron and Ray Comfort, you may know what I am talking about... it has no deadlines, it's not accredited, but it's great. It teaches you how to evangelize like Jesus did, and my goal in life is ministry, so I cannot even begin to express my excitement :).
Aside from that, I don't remember if I posted about me seeing the sleep specialist, but I am suppose to start waking up earlier (and keeping a sleep diary) so I get tired enough I actually sleep at night. I am also suppose to try melatonin, my nurse called me and told me there was no evidence that they found that it should lower blood pressure, and that I should check with my cardiologist, I explained that there isn't much known on POTS itself, that I learned this from POTSy people. For me, I'm definitely not against taking it, I take it once every few months when I'm in a total crash from not sleeping, but it gives me a hangover and I usually only take it when I have a good blood pressure. But, I am going to try taking it on a consistent basis and see what happens :).
Otherwise, I am just hanging in there. I am in a bit of a flare right now, yesterday and today I've been waking up exhausted with pain and being POTSy. But there is still improvement from where I was this time last year, so- to count those blessings!
Question Time :)
Michelle K : I hope work and school is going well for you hun :) How inspiring that you are trying again! I am also sad to hear that you vomited after a 7-day free streak of it! Your questions were; Do you suffer from abdominal pain and if so, is it something that's been investigated, or is it just a POTS thing? I do, usually only when I am having issues with digestion. I find it is worse when I am dehydrated, otherwise, my biggest issues now (though in the past I had a lot more issues in that department) are acid reflux and esophageal discomfort, though there is some improvement with diet changes (like being gluten free) as well as when I can get nexium samples since our insurance won't cover it. Do you find yourself tempted to take on way too much even though you know realistically you shouldn't be doing so much? Yes! I usually start doing something with a goal and over-do it and then get too sick to complete the goal.
Erin: Hey, that's great that you are now getting your injections! Keep us posted! I am just realizing I may have missed one of your posts, I am sorry! What do you all take for colds (minus antihistamines and decongestants you can't take with your medication)? I haven't gotten a bad cold recently to really remember, but vaporizing machines are great, menthol rubs, teas, juices, honey, lemon, etc. I also love spraying eucalyptus oil for different purposes, but that's one it could serve! Also, you can try putting the menthol rub on your feet to help with a cough. I hope you get to feeling better!
Rhianne: You are back in school, yay! I am sorry though that you are having a difficult time physically! I feel for you! Your questions, How do you stop yourself from overdoing it? I am not sure I've figured this one out yet! Sometimes I just say, okay, I need to stop or I'm going to make myself sick. But really, I am not sure! Do your legs feel itchy when you have blood pooling? Yes! Sometimes that's how I know I'm having it, the itch is like a warning to me.
Cheyanne: Going gluten free at first is horrible! I agree! It wasn't until recently I started enjoying things again (in gluten free form) like spaghetti, donuts, stir fries, etc. You should send me a message, I might be able to throw some ideas your way. I still eat at McDonalds by the way, as far as I know their fries are gluten free (not positive) and I may eat a chicken sandwich or burger with no bun but with the fixings. Your questions, Does being on your period set your POTS off? Yes! My menstrual cycle definitely worsens my POTS, seems like it makes each symptom more worse. Especially stomach upset and dizziness, headache, which are probably the most annoying and more difficult. What's the highest heart rate you've gotten that you have been aware of? Honestly, I don't know. I have such poor memory I cannot remember. I know within the past few months, it getting into the 150's was scary for me simce it would happen when I walked. Also, my breastbone doesn't protrude, I think it's good that you are making sure it isn't Marfans and not just EDS characteristics.
That is it for the questions, and my question is, What is your favorite, "I'm sick but I need out of the house," activity? mine is probably going through a drive-thru or going in my wheelchair to a small store.
Have a lovely weekend :)
~Hannah
There are some new things happening for me! I am enrolled in the online School of Biblical Evangelism (see livingwaters.com), If you've ever seen Way of the Master with Kirk Cameron and Ray Comfort, you may know what I am talking about... it has no deadlines, it's not accredited, but it's great. It teaches you how to evangelize like Jesus did, and my goal in life is ministry, so I cannot even begin to express my excitement :).
Aside from that, I don't remember if I posted about me seeing the sleep specialist, but I am suppose to start waking up earlier (and keeping a sleep diary) so I get tired enough I actually sleep at night. I am also suppose to try melatonin, my nurse called me and told me there was no evidence that they found that it should lower blood pressure, and that I should check with my cardiologist, I explained that there isn't much known on POTS itself, that I learned this from POTSy people. For me, I'm definitely not against taking it, I take it once every few months when I'm in a total crash from not sleeping, but it gives me a hangover and I usually only take it when I have a good blood pressure. But, I am going to try taking it on a consistent basis and see what happens :).
Otherwise, I am just hanging in there. I am in a bit of a flare right now, yesterday and today I've been waking up exhausted with pain and being POTSy. But there is still improvement from where I was this time last year, so- to count those blessings!
Question Time :)
Michelle K : I hope work and school is going well for you hun :) How inspiring that you are trying again! I am also sad to hear that you vomited after a 7-day free streak of it! Your questions were; Do you suffer from abdominal pain and if so, is it something that's been investigated, or is it just a POTS thing? I do, usually only when I am having issues with digestion. I find it is worse when I am dehydrated, otherwise, my biggest issues now (though in the past I had a lot more issues in that department) are acid reflux and esophageal discomfort, though there is some improvement with diet changes (like being gluten free) as well as when I can get nexium samples since our insurance won't cover it. Do you find yourself tempted to take on way too much even though you know realistically you shouldn't be doing so much? Yes! I usually start doing something with a goal and over-do it and then get too sick to complete the goal.
Erin: Hey, that's great that you are now getting your injections! Keep us posted! I am just realizing I may have missed one of your posts, I am sorry! What do you all take for colds (minus antihistamines and decongestants you can't take with your medication)? I haven't gotten a bad cold recently to really remember, but vaporizing machines are great, menthol rubs, teas, juices, honey, lemon, etc. I also love spraying eucalyptus oil for different purposes, but that's one it could serve! Also, you can try putting the menthol rub on your feet to help with a cough. I hope you get to feeling better!
Rhianne: You are back in school, yay! I am sorry though that you are having a difficult time physically! I feel for you! Your questions, How do you stop yourself from overdoing it? I am not sure I've figured this one out yet! Sometimes I just say, okay, I need to stop or I'm going to make myself sick. But really, I am not sure! Do your legs feel itchy when you have blood pooling? Yes! Sometimes that's how I know I'm having it, the itch is like a warning to me.
Cheyanne: Going gluten free at first is horrible! I agree! It wasn't until recently I started enjoying things again (in gluten free form) like spaghetti, donuts, stir fries, etc. You should send me a message, I might be able to throw some ideas your way. I still eat at McDonalds by the way, as far as I know their fries are gluten free (not positive) and I may eat a chicken sandwich or burger with no bun but with the fixings. Your questions, Does being on your period set your POTS off? Yes! My menstrual cycle definitely worsens my POTS, seems like it makes each symptom more worse. Especially stomach upset and dizziness, headache, which are probably the most annoying and more difficult. What's the highest heart rate you've gotten that you have been aware of? Honestly, I don't know. I have such poor memory I cannot remember. I know within the past few months, it getting into the 150's was scary for me simce it would happen when I walked. Also, my breastbone doesn't protrude, I think it's good that you are making sure it isn't Marfans and not just EDS characteristics.
That is it for the questions, and my question is, What is your favorite, "I'm sick but I need out of the house," activity? mine is probably going through a drive-thru or going in my wheelchair to a small store.
Have a lovely weekend :)
~Hannah
Monday, January 23, 2012
Almost 200 posts!
Yes guys! Actually this will be the 168th post on the blog but we are getting close right? That is so cool.
So I am going to start with the posts then I will talk about my week, (well type not talk, haha).
Logan: Where are you girl? If you don't post tomorrow I will spam your inbox. Kidding, but I will send you a message and I hope you are okay. I know you were throwing up yesterday.
Cheyenne: You're driving? Wait, aren't you only 15? In Australia, you can't drive until you are 16, when you can apply for your Ls (learners permit) then at seventeen you can get your red ps (red permit), green ps, then your blacks (full license). Did you have any issue getting your permit? My doctors I don't think will ever let me drive.
You asked about gluten, and no I am not gluten free but I try and avoid white rice and bread.
Miranda: I am glad your homeschool review went well. You asked about what we do for joint pain and stiffness. I don't get that so I am not much help. Have you tried yoga though?
Hannah: Australia zoo is one of the zillion reasons you should get your but out to Australia! Haha, come to my house and we can have vegemite and tim tams. Hehe! Aussie Aussie Aussie Oi Oi Oi. I am sorry you overdid it cleaning by the way.
Michelle K: My Aussie Pal! First of all, even though I think you are crazy for going back to work, I hope it goes well for you! And I'm glad you have found someone, he sounds like a nice guy. You asked about abdominal pain and yes I do get that, especially after I eat Chinese food.
Erin: I just want to say that American healthcare sounds CRAZY! 25 dollars a day. I am so glad I'm Aussie. You asked about colds and I suck on eucalyptus lollies and take honey, I also brush my teeth all the time.
My week has been good, I overdid it a bit during the weekend but oh well. My Grandma was here, so I hung out with her a bit. We also went school shopping and I got all my supplies, I even have a new uniform (seniors get a new uniform at my school).
On the weekend, I helped my friend with my drama project (for her HSC) and it was a lot of walking, standing, running. Two of my friends stayed over on Saturday and we watched Music and Lyrics (which is a great film). Sunday night I was so tired I went to sleep at like 7!
This is the last week of school holidays. So my question this week is how do you stop yourself from overdoing it?
At the moment I do a to do list everyday with all the stuff I want to accomplish and stop when I do all those things, even things like "wash your hair" is on the list. I can only put so many tasks on the page. Haha.
I hope everyone has a good week. And I will let you know next week how I am going back at school.
So I am going to start with the posts then I will talk about my week, (well type not talk, haha).
Logan: Where are you girl? If you don't post tomorrow I will spam your inbox. Kidding, but I will send you a message and I hope you are okay. I know you were throwing up yesterday.
Cheyenne: You're driving? Wait, aren't you only 15? In Australia, you can't drive until you are 16, when you can apply for your Ls (learners permit) then at seventeen you can get your red ps (red permit), green ps, then your blacks (full license). Did you have any issue getting your permit? My doctors I don't think will ever let me drive.
You asked about gluten, and no I am not gluten free but I try and avoid white rice and bread.
Miranda: I am glad your homeschool review went well. You asked about what we do for joint pain and stiffness. I don't get that so I am not much help. Have you tried yoga though?
Hannah: Australia zoo is one of the zillion reasons you should get your but out to Australia! Haha, come to my house and we can have vegemite and tim tams. Hehe! Aussie Aussie Aussie Oi Oi Oi. I am sorry you overdid it cleaning by the way.
Michelle K: My Aussie Pal! First of all, even though I think you are crazy for going back to work, I hope it goes well for you! And I'm glad you have found someone, he sounds like a nice guy. You asked about abdominal pain and yes I do get that, especially after I eat Chinese food.
Erin: I just want to say that American healthcare sounds CRAZY! 25 dollars a day. I am so glad I'm Aussie. You asked about colds and I suck on eucalyptus lollies and take honey, I also brush my teeth all the time.
My week has been good, I overdid it a bit during the weekend but oh well. My Grandma was here, so I hung out with her a bit. We also went school shopping and I got all my supplies, I even have a new uniform (seniors get a new uniform at my school).
On the weekend, I helped my friend with my drama project (for her HSC) and it was a lot of walking, standing, running. Two of my friends stayed over on Saturday and we watched Music and Lyrics (which is a great film). Sunday night I was so tired I went to sleep at like 7!
This is the last week of school holidays. So my question this week is how do you stop yourself from overdoing it?
At the moment I do a to do list everyday with all the stuff I want to accomplish and stop when I do all those things, even things like "wash your hair" is on the list. I can only put so many tasks on the page. Haha.
I hope everyone has a good week. And I will let you know next week how I am going back at school.
Sunday, July 10, 2011
Hold on, baby you're loosing it
This week has been crap.
There is no nicer way to phrase it then crap.
So I am going to start with my week.
On Monday, I did schoolwork and then when over to a friend's place to get help in Maths. I was pushing myself but I wasn't going to admit that.
Tuesday I did schoolwork in the morning and then in the afternoon I crashed really hard. I went to watch Angus, thongs and perfect snogging but even that seemed too hard for me so I went to sleep and didn't eat anything for dinner.
Wednesday, ah the wonderful joys of Wednesday. Worst. Pots. Day. Ever. As you guys know I spent Wednesday night in the ER. I got to the point at home, where I couldn't speak, or even crawl. So Mum drove me in and they put me straight in via the ambulance entry in a wheelchair.
The doctor I saw was really good. He didn't know of Pots but he did some quick research and decided to give me an IV and also check my salt/potassium levels.
I got three litres overnight and managed to walk out of the hospital Thursday morning where I slept all day.
The next bit I will be lazy and copy and paste from my blog...
We left at 3am Friday to drive to Sydney and we had some time to kill before we got there so we went for a drive around Sydney Habour and around the bridge and opera house. I don't have pictures sorry! The iPod was flat.
Then we went shopping and I'll post a seperate post about that experience.
It was pretty unproductive actually, I don't understand why they got me down there in my opinion.
Both my parents were in the room, as well as my professer, his registar and my social worker.
We talked about pacing and how I shouldn't overdo it. Haha, comes from the people who made me overdo it against my own will during my last admission.
I got posturals done, weight and height. My weight has gone up a bit after my recent weight loss and my height is 174cm I think.
I blacked out a few times going to the next room where they did all that stuff. When I got back my breathing was all over the place and my heart was pounding. I was dizzy as and everything was shaking.
The appointment ended and my
social worker and professer left. His registar was filling out some forms for us.
When we went to leave, I stood up and collasped into my chair, blacking out. Dad tried to help me up but I just crashed into him hard and fainted. Tried again, ditto.
The registar came back to return the forms and the OT came and got me a chair.
They sent me home like that.
They sent me home unable to walk, stand or speak one sentence.
Anyway car ride home, bad earthquake vertigo had to crawl into my Aunty's house where we stayed. I threw up four times. Then went to sleep.
Then I came home Saturday. Yesterday, I can't remember what I did. And today is still shit as. I have fainted like everyday this week and my tremors and vertigo have been so bad. School goes back on Tuesday so I hope I can return. I go back to hospital for a two week admission on August 1st.
This post is turning out to be...long. Sorry guys.
Trixie is doing well and is getting along with my labrador. Just thought I'd mention that.
So now, finally! let's get on to the questions shall we?
Logei asked: does nutrition have a big impact on your symptoms?
Yes. It does. I find whenever I eat crap (chocolate, junk food, excetra) I feel so bad and tachy and everything.
Erin asked: Any weight loss or gain since pots?
Since starting on my SSRI I have lost five kilos in a few short weeks.
Hannah: Any natural remedies for headaches?
Water? Sorry I don't get headaches. True fact about me: I will only get a headache when I am about to throw up. :) it's useful when nausea is a symptom but if i have a headache its like pass me that bucket!
My question is: are you a fainter/if so give me some advice!
Yeah I haven't been a fainter since Wednesday.
And haha I have a funny fainting story. Okay I was talking to my Dad in the hallway and I go to faint so I go to grab hold of him around the neck except I miss-punching him in the face! I regain consciencness to ah! you bitch! haha it was really funny. It was revenge for when he was zapping me in my wheelchair on Friday causing me to spill a bottle of water on myself.
Well I am going to go because this post is way too long and I am sorry for that.
Rhianne
There is no nicer way to phrase it then crap.
So I am going to start with my week.
On Monday, I did schoolwork and then when over to a friend's place to get help in Maths. I was pushing myself but I wasn't going to admit that.
Tuesday I did schoolwork in the morning and then in the afternoon I crashed really hard. I went to watch Angus, thongs and perfect snogging but even that seemed too hard for me so I went to sleep and didn't eat anything for dinner.
Wednesday, ah the wonderful joys of Wednesday. Worst. Pots. Day. Ever. As you guys know I spent Wednesday night in the ER. I got to the point at home, where I couldn't speak, or even crawl. So Mum drove me in and they put me straight in via the ambulance entry in a wheelchair.
The doctor I saw was really good. He didn't know of Pots but he did some quick research and decided to give me an IV and also check my salt/potassium levels.
I got three litres overnight and managed to walk out of the hospital Thursday morning where I slept all day.
The next bit I will be lazy and copy and paste from my blog...
We left at 3am Friday to drive to Sydney and we had some time to kill before we got there so we went for a drive around Sydney Habour and around the bridge and opera house. I don't have pictures sorry! The iPod was flat.
Then we went shopping and I'll post a seperate post about that experience.
It was pretty unproductive actually, I don't understand why they got me down there in my opinion.
Both my parents were in the room, as well as my professer, his registar and my social worker.
We talked about pacing and how I shouldn't overdo it. Haha, comes from the people who made me overdo it against my own will during my last admission.
I got posturals done, weight and height. My weight has gone up a bit after my recent weight loss and my height is 174cm I think.
I blacked out a few times going to the next room where they did all that stuff. When I got back my breathing was all over the place and my heart was pounding. I was dizzy as and everything was shaking.
The appointment ended and my
social worker and professer left. His registar was filling out some forms for us.
When we went to leave, I stood up and collasped into my chair, blacking out. Dad tried to help me up but I just crashed into him hard and fainted. Tried again, ditto.
The registar came back to return the forms and the OT came and got me a chair.
They sent me home like that.
They sent me home unable to walk, stand or speak one sentence.
Anyway car ride home, bad earthquake vertigo had to crawl into my Aunty's house where we stayed. I threw up four times. Then went to sleep.
Then I came home Saturday. Yesterday, I can't remember what I did. And today is still shit as. I have fainted like everyday this week and my tremors and vertigo have been so bad. School goes back on Tuesday so I hope I can return. I go back to hospital for a two week admission on August 1st.
This post is turning out to be...long. Sorry guys.
Trixie is doing well and is getting along with my labrador. Just thought I'd mention that.
So now, finally! let's get on to the questions shall we?
Logei asked: does nutrition have a big impact on your symptoms?
Yes. It does. I find whenever I eat crap (chocolate, junk food, excetra) I feel so bad and tachy and everything.
Erin asked: Any weight loss or gain since pots?
Since starting on my SSRI I have lost five kilos in a few short weeks.
Hannah: Any natural remedies for headaches?
Water? Sorry I don't get headaches. True fact about me: I will only get a headache when I am about to throw up. :) it's useful when nausea is a symptom but if i have a headache its like pass me that bucket!
My question is: are you a fainter/if so give me some advice!
Yeah I haven't been a fainter since Wednesday.
And haha I have a funny fainting story. Okay I was talking to my Dad in the hallway and I go to faint so I go to grab hold of him around the neck except I miss-punching him in the face! I regain consciencness to ah! you bitch! haha it was really funny. It was revenge for when he was zapping me in my wheelchair on Friday causing me to spill a bottle of water on myself.
Well I am going to go because this post is way too long and I am sorry for that.
Rhianne
Sunday, July 3, 2011
I'm still standing
The questions:
Francesca's question: If french fries are called chips, what are chips called?
In Australia we call both french fries and chips, chips. Yep, if that is any help.
Hannah's question: What are your POTSy essentials when traveling?
When ever I go out whether to school or on holidays, I take my salt shaker and salty snacks. My beloved vegemite! My walking stick, Sir Sticky. My drugs. Not much really.
Miranda's questions: Do you have vision problems?
No, but I do get blurred vision as a major symptom. I am colour blind too.
My question: what is your favourite type of exercise?
For those of you that don't know, I have been a bit of an exercise freak this week. Running, trampoline, weights, pilates, bike. On average doing about 2 hours of exercise a day. My favourite is definately the trampoline.
My week:
It has been good. I had a pots attack yesterday and I have picked up a bit of a cold but doing really well pots wise. I have been going to school four days a week and going to classes and stuff. It's been really good. I feel really fortunate.
Tuesday was my birthday and thanks you guys for the birthday messages. It was a good day and as many of you know, I got a gorgeous puppy called Trixie. I also got some DVDs, the yellow wiggle autobiography and some little odds and ends. My friends got me a gorgeous bear that they all wrote messages on. It is adorable.
So I don't have much to say. It hasn't been that exciting. I picked my subjects for next year and for the HSC they are:
Society and Culture
Drama
Modern History
Biology
Advanced English
Extension English
Maths
I think it will be good. Hopefully my health stays good.
Rhianne
Francesca's question: If french fries are called chips, what are chips called?
In Australia we call both french fries and chips, chips. Yep, if that is any help.
Hannah's question: What are your POTSy essentials when traveling?
When ever I go out whether to school or on holidays, I take my salt shaker and salty snacks. My beloved vegemite! My walking stick, Sir Sticky. My drugs. Not much really.
Miranda's questions: Do you have vision problems?
No, but I do get blurred vision as a major symptom. I am colour blind too.
My question: what is your favourite type of exercise?
For those of you that don't know, I have been a bit of an exercise freak this week. Running, trampoline, weights, pilates, bike. On average doing about 2 hours of exercise a day. My favourite is definately the trampoline.
My week:
It has been good. I had a pots attack yesterday and I have picked up a bit of a cold but doing really well pots wise. I have been going to school four days a week and going to classes and stuff. It's been really good. I feel really fortunate.
Tuesday was my birthday and thanks you guys for the birthday messages. It was a good day and as many of you know, I got a gorgeous puppy called Trixie. I also got some DVDs, the yellow wiggle autobiography and some little odds and ends. My friends got me a gorgeous bear that they all wrote messages on. It is adorable.
So I don't have much to say. It hasn't been that exciting. I picked my subjects for next year and for the HSC they are:
Society and Culture
Drama
Modern History
Biology
Advanced English
Extension English
Maths
I think it will be good. Hopefully my health stays good.
Rhianne
Monday, June 27, 2011
Make you happy
I think I will start with the questions:
Logei: are you scared of clowns?
I wouldn't say I was scared of them but they are way freaky. I have a fear of elevators and mice.
Erin: Good to see you on the blog! You did a great job. You asked: do you use a shower chair?
Yes I do. Well it's more like a step stool actually.
What do you guys want to do when you grow up/graduate? And how do you think dysautonomia will affect your choice?
Well I want to be a novelist but seeing that is a pipe dream, journalism or script writing. I don't think I will have pots forever and even if I do, they are desk jobs.
And Miranda, I hope things work out better soon I am thinking of you.
Francessa didn't have a question (I probably forgot to tell her to ask one). You were a great sub though! :)
My question is: does anything cause/help with tremors?
I have had them a lot recently. I scared my English class when I went on Wednesday with what resembled an epileptic fit.
So onto my week:
Well early last week we had a lot of stuff for subject. There was a night information session on Wednesday and I did pretty well pots wise.
I picked:
Drama
Biology
Modern history
Society and Culture
Maths
Advanced English
This is the first year you get to pick all your subjects so it is pretty exciting. My pots has been good too so I have managed to do a lot.
And yeeeeee, it's my birthday tomorrow. I will be fifteen.
So this has been a good week. The best in months so I am really really happy.
And I have upped my school days to 4 a week and am returning to my maths class (well returned I went today).
Life is great.
-Rhianne
Logei: are you scared of clowns?
I wouldn't say I was scared of them but they are way freaky. I have a fear of elevators and mice.
Erin: Good to see you on the blog! You did a great job. You asked: do you use a shower chair?
Yes I do. Well it's more like a step stool actually.
What do you guys want to do when you grow up/graduate? And how do you think dysautonomia will affect your choice?
Well I want to be a novelist but seeing that is a pipe dream, journalism or script writing. I don't think I will have pots forever and even if I do, they are desk jobs.
And Miranda, I hope things work out better soon I am thinking of you.
Francessa didn't have a question (I probably forgot to tell her to ask one). You were a great sub though! :)
My question is: does anything cause/help with tremors?
I have had them a lot recently. I scared my English class when I went on Wednesday with what resembled an epileptic fit.
So onto my week:
Well early last week we had a lot of stuff for subject. There was a night information session on Wednesday and I did pretty well pots wise.
I picked:
Drama
Biology
Modern history
Society and Culture
Maths
Advanced English
This is the first year you get to pick all your subjects so it is pretty exciting. My pots has been good too so I have managed to do a lot.
And yeeeeee, it's my birthday tomorrow. I will be fifteen.
So this has been a good week. The best in months so I am really really happy.
And I have upped my school days to 4 a week and am returning to my maths class (well returned I went today).
Life is great.
-Rhianne
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