Tuesday, January 31, 2012

Busy, busy, busy, always rushing

So I am sort of busy and really tired from school so this will be somewhat quick.

Questions:

Cheyenne: You were talking about how you miss Maccas and I don't crave junk food anymore (not that I was ever a junk food addict). Your taste buds will change over time.

I am actually good at Maths, my English skills got a lot worse when I got sick. I literally had to reteach myself how to read.

I don't have Marfaans but I already told you that on Facebook.

Does your period set off your pots? And yes, I have pots symptoms since year 8 but only during my period. Only during Year 9 I started getting symptoms and attacks outside my period.

Logan: I'm so glad that you got an exercise bike. I love mine. :) And I hope your pump keeps working.

Miranda: Sorry you have to move! I moved twice in year 8 (within two months) and it was horrible. The second move we moved across the road and down a house and we carried everything! Even our heavy dinning room table. Glad you are getting caught up at school.

Michelle R; HAPPPY BIRRTHDAY! You are 18 now right?

Michelle K: Hope you are going well back at work. And go Australia Day! Aussie Aussie Aussie! Oi Oi Oi!

Do you find yourself tempted to take on way too much even though you know realistically you shouldn’t be doing so much?
Um, I don't know really. I usually just do what I need to. Except I am doing 13 units at school.

My question: Do your legs feel itchy when you have blood pooling?

So guys I am really tired. SCHOOL IS HARD! Not academically but physical wise. I came in the door yesterday and leant on the filing cabinet for 10 minutes. My sister Shenae was like did you go on the bus? And I was like yeah, I've had to much education. I felt like I was going to puke, throw up and faint all at once.

Today wasn't that great either. I have a headache and I am exhausted now. I only have one class tomorrow (a double period of extension English) which is good. My friends and I are going for pancakes in the morning.

-Rhianne

Friday, January 27, 2012

Getting Caught Up

I'm finally getting caught up on my algebra 2 class! I stayed after school today and I'm going to again some more next week. It's really awesome to have a teacher that can sympathize with what I (and we) are dealing with, although she doesn't quite understand it. My memory is also pretty bad, my math skills also, so it takes me a lot longer than everyone else to learn and actually comprehend it. 

I don't remember if I mentioned it before, but we're in the process of looking for a new house, and in the next month or so we'll be moving. I'm really anxious to see how my mom and I make it through the move; last time we moved it was a year or so before my POTS started getting bad and before my mom's pain and ankylosing spondylitis/arthritis got bad too.

I'll move onto the questions before I start rambling on too much.

Cheyanne:  Does being on your period set your POTS off? Not really, but I do get really bad cramps and vertigo. 

Rhianne: I haven’t tried yoga, I’ve looked up some basic stuff but it all looks like positions that I can’t be in for very long, without getting tachycardia and all that good stuff. Your question was how do you stop yourself from overdoing it? I really don’t do much, but if I do I always take breaks (and naps). I’ve even sat on the shelves in grocery stores because I needed a break. :)

Erin: What do you all take for colds? I rarely just get colds; I’m like a magnet for bronchitis, coxsackievirus and strep throat. But I’d suggest hot tea with honey (I like a bit of lemon too).

Michelle K: Do you suffer from abdominal pain and if so is it's something that has been investigated, or is it just a POTS thing? Yes, I always have abdominal pain (and nausea). My gastroenterologist won’t do any more testing on me, so I really don’t know why I have it. He said it was from constipation, which is something that I also frequently have, then dismissed it. I’m really hoping to do to the doctor that Hannah suggested, but I keep forgetting to ask my mom to call!

Bis zum nächstes Mal,
Miranda

Wednesday, January 25, 2012

My bad

Forgot to tell the readers who was posting! And for some reason it wouldn't let me edit! sorry, the below post is from Logan!

I'm Alive!

Having my teeth out did not go well at all!  I was pretty sick for while from the the anesthesia, and the Codeine gave me headaches which turned into migraines. Then one side of my mouth got infected, and I just felt lousy because my body was trying to fight the infection! I saw a doctor and she gave me antibiotics. (I'm feeling better now.) But it was just such a mess!

At the moment I'm really having problems with my feeding tube pump, sometimes it clogs, (and its no wonder with all the thick blenderized stuff i put through it. ) Sometimes even though the feeding tube bag is full the pump says *no food* for some reason. Either way, a very loud screechy alarm goes off all the time when the pump is having trouble. I get really sick all the time even just from noise of the alarm, and its making getting enough calories really difficult too. We end up throwing away half of what we pour in the bag because the machine won't cooperate.
Overall I'm still feeling so much better since I was able to switch to this diet, so I'm just trying to make the best of it though. 

-Logan