Feeling Wonderful!

Hey Guys, I haven't felt this good in..... oh gosh I can't remember. You guys know I've been experimenting with my diet and I can't believe what an impact its having on my symptoms! I feel fantastic! 

Francessca, We might rub elbows about complaining.  I do feel that no matter how bad we think we have it, there is always someone out there who has it worse. Also God's word says to do all things without complaining (Philippians 2:14). However God's word also says that He loves us so much, He collects all of our tears in a bottle. God cares so much about my pain, so what right do I have to not care about the pain of other people? And just like crying, God gives us natural ways to vent when we're upset. I think there is a fine line between whining or complaining, and venting. If someone does complain I should try to be understanding and patient with them, and I certainly will complain at times. I am feeling better, but I'm not healed or anything, and when I feel bad sometimes I'm going to talk about it. That's part of the purpose of this blog right? To help educate other people so they understand what its like to live with chronic illness, and to let others with chronic illness know they aren't alone. 

Rhianne will be happy to know that I took her advice, even though im feeling fantastic I didn't run.  I let physical therapy be my workout, and tried not to overdo it.

 What is the hardest part of chronic illness?  Isolation!

Do you get brain fog?  I used to, but its been better since I changed my diet.  

 I don't have a medical alert bracelet, although I should get one!

 I am doing (water) physical therapy, and it does help so much!

-Logan

Super Late.

Okay so this is super late but I'm here now subbing again.
My week had been hell symptom wise, but on a side note I did start physical therapy for my headaches on Friday, which really did a bunch to relieve so much stress. But shortly after that my pain kicked my butt and still continues to do so even right now. I have to do 6 weeks of PT and I'm just really hoping something will help better than any pills or nerve blocks.
On a better note my bestfriend bought me some ultra cute shoes.

It's safe to say I'm in loveeeee. <3

Q&A TIME:

1. On whether I own an emergency bracelet...

I don't own one but I've always wanted to, I mean you never know when it could come in handy.

    2.) About brain fog...
I think it's safe to say I get brain fog quite often these days and I'm not really sure how long they last either :\

My question:
If anyone has done PT, how did you like it? did it help?

til the end,
Michelle

Meet your Sunday...

Hiiii!

My names Erin.
I am a soon to be twenty something year old from the Midwest.
I am going on six years of college, but will be graduating in May 2012, finally.

..and as you figured,
I have POTS & EDS  

 

I just thought I would make this post be a get to know me post, since that is what the others did at the very beginning. So here it goes

.ONE.

I love meeting new people. 

I think communication is key to getting through lifes struggles, especially for those who have a chronic illness. Having someone to relate to and completely understand your symptoms and struggles can be so healing.

.TWO.

I hate the heat. 

Not just because of POTS (which we all know makes it extra worse) but I really can't stand it.

My favorite season is fall. I love the cool, crisp weather and watching the leaves changing, & listening as they "crunch" when you step upon them.

Did I mention the apple cider?!

.THREE.

I am an only child & learned to be independent at a really young age.

My mom is my support system and I really don't think I would have had the strength without her constant guidance and support. I also have a wonderful boyfriend (my high school sweetheart to be exact) that I have been dating for almost seven years now. He has been with me through it all and has never left my side. I am a lucky girl to have found such a great guy :)

.FOUR.

I have always struggled with my health.

Ever since the age of seven. Ever since high school, I have never made it through a complete year without being in the hospital or having surgeries/procedures. The stigma of "the sick girl" has always been my label.

.FIVE.

I have a strong obsession with owls :) 

I won't say why, but my future kids room will be owl themed, that's for sure!

I have a persona blog, that you can check out here if you would like to know more!

I also have just created a blog that is solely informational about the main facts of EDS/POTS and their correlation.  

You can check it out here

I originally made it for my family, to help them understand this confusing health condition, but thought I would share it with everyone as well!

************

If you ever need anyone to talk to, advice, or anything, please let me know!

While I am a tad older than the other girls, I can provide insight on what it is like to go through college with a chronic illness!

ambivalentbliss(at)gmail(dot)com

♥

Erin

Saturday Blogger ,Francessca :)

So were doing a new thing  the dysautonomiacs are having a Saturday and sunday blogger,Me and Erin.
And for those who don't know me  Im Francessca (fran-chess-kah) for those who can't pronounce my name although my two year old ''sister'' can say it since 18months.Anyways your probably wondering do I have pots ??? Well of course i do because i probably wouldnt be on the blog if i didnt
I was diagnosed in 07 when i was thirteen years old im now 17
I showed the classic symptoms and it was simple to diagnose ,probably because my mom has pots
shes had it since 1980 thats a looooong time.It wasent even called pots It was called diagnosis X
I often wondered why they picked the name pots its so close to pot the drug as in weed
pots is hereditary alot of us get it from are parents  thats why ill most likley adopt kids when im older.
theres alot of advantages to having a mom with pots one big advantage was that i didnt have to go throw all the dumb tests like tilt table and junk.One thing about me is i hate to let people know im sick  i could be in the hospital right now and i would tell no one I hate pity and complaining i don't like whiners or symptom documenters i cant stand most of the groups on facebook  when people flip out because they lost a pound or there feet are cold its like big freakin deal  focus on something else dont let pots rule you :)
from reading past entries everyone seems to introduce there self with some fun facts here are mine

1 when I grow up I want to work in oncology pediatrics (cancer kids)

2 I like singing and have some unusual talent ,like yodeling and rolling my eyes back,feet behind head,farting with my armpit,pig calls ,impersonating celebs and singing like them useless little fun stuff oh and i can talk like Fran drescher

3 I'm Hispanic American and live with my mom and cat im fluent in spainsh but dont use it

4 i wanna marry a jewish guy when i grow up and do the hora  and i love sign language and wanna adopt a deaf kid when im  older

5 im the creator of dizzy dabee the dysautonomia rag doll and i have my own personal blog
called dizzy dabee .blogspot.com

6 i collect babysittersclub sweet valley twins and lurlene mcdaniels books if you have any extras mail them to me lol

7  and i dont drive i personally think driving with pots is wrong if your super sick
i cant really think of anything else so i guess thats it  oh yeah just remember
HAPPY BIRTHDAY TANA !!!!!
oh and anyone who wants to add me on fb please do so
http://www.facebook.com/#!/profile.php?id=100000213605967
 im just that cool :) i dont have a cool  exit name thingy dont know how to make them thats gonna be my question  how do you make the little signuter thing ?

i really dont remember all the questions so im gonna wing it someone i think hannah asked about tremors ?
yes i get tremors alot i even got this new thing where my whole body shakes and i look as if im having some type of seziure or what not its kinda embrassing it happens in public alot and it looks like im doing something dirty like i dont wanna say because your all kinda young well hannahs like older then me i think but i think you guys get it 
i dont remeber the other questions
ill try to be a really good blogger i dont know much about pots my docter believes i should get caught up in that

my question how many of you guys where medical alert braclets ?

Testing...Finally!

Hey guys! My mouth is doing better, and I go back to the oral surgeon on August 3 (next Wednesday) for a check up. My cheeks are almost back to normal, except for the bruising. And then next Friday I finally get to have my upper GI series done! I'll be making a video about that soon, and I'll attempt to film it. My chest pains haven't been so bad, but I think that's just because I've only been eating soft pretzels and bananas & peanut butter. The regurgitation is still the same, I had a panic attack the other day because I took a pill and it came back up and got stuck. I've had some tremors, but not full body one's, usually just my arms or legs. I'd really like to get an EEG done to see if I'm having seizures.

I really can't think right now, I am so tired, even though I just took a 5 hour nap, so onto the questions!

Rhianne: I know you didn't have a question but I just wanted to put this on here for you : )

Michelle's Question: What do you think is the hardest part about having a chronic illness? 

I think it'd probably be not being able to do things that I want to do, in the way I want them. But it's not like I'm just going to give up on what I want to do, just because I have chronic illnesses.

Hannah's Question: When (if) you have tremors, do your eyes roll, do you go “in and out” like your not there then you are, do you have trouble speaking, do you get dizzy and have weakness so bad you can’t walk after? It depends on how bad mine are, my eyes roll when I'm having a really bad one (like in the oral surgeons office), but when they're that bad I can barely remember them.  With the usual ones that I have I do have the trouble speaking (and thinking), dizziness and weakness; those ones are usually just in my legs and/or arms.

About the liquid food: I have to be really careful with the food I eat, because if there's too much acidity in it my tongue will swell and it makes regurgitation worse. 

I almost forgot, but thank you so much for the card and slushie! That was so sweet : ) I was so out of it when you came over, so you'll have to come over some time when I'm not in pain or on pain killers.

Cheyanne's question: Do you all get brain fog and how long does it last? Yes, I get it really bad and I have it a lot. Sometimes I'll just go through out the day saying weird stuff or I can't even add 2+2. 

Enough of my rambling...Until next time,