Hello beloved followers!
We are currently under "organization construction." (Does that even make sense?!)
We are working to try to get things moving here again. We are working to get a post everyday again, as well as a little something'something else :D. Please keep an eye out!
Monday, March 11, 2013
Friday, March 1, 2013
Hey lovelies! I'm sorry I didn't read through the last posts :(.
This past week and the week before has been very challenging. My grandma passed away and my grandfather is in the hospital at the moment. So it's been one thing after another but nonetheless God is good :)
Trough this I'm learning new coping mechanisms to deal with stress because simply put, there's too much going on to continuously have on mind... And it can be hard not to think about things when you're sick at home, you've got plenty of time to think! But I've been throwing myself mentally into things whether its crocheting, sewing, drawing, or what have you. It's teaching me in a sense to push myself beyond my limits and be more productive in order to stay sane. Now here soon I might have a total crash blow out, but we'll see!
I think us dysautonomiacs should have a bit of a conference though to see what's happening with this blog. I myself am guilty of forgetfulness and neglectful ness at times, but I think we should really come up with a game plan :) when I can think to, I plan to try to get the ball rolling :)
I love you ladies and you readers, thanks so much for taking the time to read our musings.
This is such a short post I apologize, I have a lot on my brain at current.
Until next time....
-Hannah
This past week and the week before has been very challenging. My grandma passed away and my grandfather is in the hospital at the moment. So it's been one thing after another but nonetheless God is good :)
Trough this I'm learning new coping mechanisms to deal with stress because simply put, there's too much going on to continuously have on mind... And it can be hard not to think about things when you're sick at home, you've got plenty of time to think! But I've been throwing myself mentally into things whether its crocheting, sewing, drawing, or what have you. It's teaching me in a sense to push myself beyond my limits and be more productive in order to stay sane. Now here soon I might have a total crash blow out, but we'll see!
I think us dysautonomiacs should have a bit of a conference though to see what's happening with this blog. I myself am guilty of forgetfulness and neglectful ness at times, but I think we should really come up with a game plan :) when I can think to, I plan to try to get the ball rolling :)
I love you ladies and you readers, thanks so much for taking the time to read our musings.
This is such a short post I apologize, I have a lot on my brain at current.
Until next time....
-Hannah
Tuesday, February 26, 2013
Hidden Hearts Alliance
Check out this website guys, its awesome!
http://www.hiddenheartsalliance.org/
"Mik's Hidden Hearts Alliance mission is to offer hope through empowerment and community awareness to both hospitalized and homebound teens and their families who suffer from Dysautonomia and other life-changing hidden chronic illnesses."
- Hope you all are doing ok. Jesus loves you!
Logan.
http://www.hiddenheartsalliance.org/
"Mik's Hidden Hearts Alliance mission is to offer hope through empowerment and community awareness to both hospitalized and homebound teens and their families who suffer from Dysautonomia and other life-changing hidden chronic illnesses."
- Hope you all are doing ok. Jesus loves you!
Logan.
Tuesday, February 5, 2013
Book Addict
I'll keep this short since I'm really not feeling good today. I really only have a few good "usable" hours early in the day where I'm up to doing chores, going to a doctor's appointment, ect. I usually get up in the morning sometime between 10 am and noon (due to being up all night with insomnia), and then I'm sick by mid or late afternoon. After that I'm pretty much useless lol. Sometimes I just wake up feeling sick too, on those days I don't even get a few good hours in the morning.
In spite of that I'm trying really hard to get my room(s) cleaned up and organized. (And keep them that way.) And I want to start a new online course for school too called "Study Skills." I should be able to take it as an elective, and based on the course description I'm hoping it might help me find some ways to better manage my memory problems. Or at least get through school work faster maybe.
On the same note, I've had several Dysautonomia friends recommend doing "mental exercise" everyday to help brain fog and memory problems, like reading, schoolwork, playing computer games, doing crossword puzzles, whatever. I've just been trying reading alot the last few months, and when I do it daily I do notice that in general my thoughts aren't quite as sluggish! I haven't seen any overall improvement in my memory, or in my brain fog itself, but I think that on top of those issues.. over the last few years my mind has kind of atrophied a little bit from being homebound all the time. Like when I got sick I stopped going to school, I stopped reading all the time. I stopped playing flute and only I toyed with other instruments. I couldn't really be social or interact with people much. And then there are all the little things like not doing art or sports, not listening to music too much, or being able to even look at something that's too colorful or complicated, because of sound, light, and visual sensitivities. Do you guys get it? My memory problems and brain fog started happening right away when I got sick, but over the last few years I think my mind has also atrophied a little just from being homebound and isolated from all the stimulus and "exercise" it used to get every day.
I think I'm just going to stick with reading for now and see how it goes.
Hannah: my favorite part of winter is probably the snow, it can be so beautiful!
-Logan
John 16:33
These things I have spoken to you, that in Me you may have peace. In the world you will have tribulation; but be of good cheer, I have overcome the world.”
In spite of that I'm trying really hard to get my room(s) cleaned up and organized. (And keep them that way.) And I want to start a new online course for school too called "Study Skills." I should be able to take it as an elective, and based on the course description I'm hoping it might help me find some ways to better manage my memory problems. Or at least get through school work faster maybe.
On the same note, I've had several Dysautonomia friends recommend doing "mental exercise" everyday to help brain fog and memory problems, like reading, schoolwork, playing computer games, doing crossword puzzles, whatever. I've just been trying reading alot the last few months, and when I do it daily I do notice that in general my thoughts aren't quite as sluggish! I haven't seen any overall improvement in my memory, or in my brain fog itself, but I think that on top of those issues.. over the last few years my mind has kind of atrophied a little bit from being homebound all the time. Like when I got sick I stopped going to school, I stopped reading all the time. I stopped playing flute and only I toyed with other instruments. I couldn't really be social or interact with people much. And then there are all the little things like not doing art or sports, not listening to music too much, or being able to even look at something that's too colorful or complicated, because of sound, light, and visual sensitivities. Do you guys get it? My memory problems and brain fog started happening right away when I got sick, but over the last few years I think my mind has also atrophied a little just from being homebound and isolated from all the stimulus and "exercise" it used to get every day.
I think I'm just going to stick with reading for now and see how it goes.
Hannah: my favorite part of winter is probably the snow, it can be so beautiful!
-Logan
John 16:33
These things I have spoken to you, that in Me you may have peace. In the world you will have tribulation; but be of good cheer, I have overcome the world.”
Saturday, January 26, 2013
:)
Hey lovelies, I hope we can really re-vamp this blog. I'm sorry to you guys and the readers that I've been so horrible at posting. By the way, this is Hannah and I'm going back to Fridays again :).
There is not a whole lot happening with me at this moment in time, other than the ups and downs as you guys know how that goes. Right now I'm trying to set small goals for myself to complete bit by bit. I started to have a bit of a "pity party" today about not being to a place where I could work or attend college, but I started to come back out of it :). There is so much value in this time, the here and now. Sometimes the time feels wasted, but when you're living in light of eternity, times like this really aren't wasted (though, don't get me wrong, it's definitely possible to waste time!).
It snowed here today and I went out to play in it :) I was going to try to post a video but I'm having problems uploading it right now to youtube, but if you wanna see it, I'm going to try to post it to my youtube and blog (youtube: hannahsdysautonomic. blog: livingwithdysautonomia.blogspot.com) soon!
I hope to push myself to really enjoy the little things in life. I was doing well at that for a while, and I want to get back to that. Not measuring a day by how much I can do, but enjoying what I can do, even if it's very little. That is something so beneficial and beautiful to feel :).
Logan, I hope you can find a formula that really works for you! You've come so far with pushing and fighting to get your GI under control, keep at it!
question: What is your favorite thing about winter? The snow? Bundling up? Sitting by fireplaces? Lol.
I think one of my favorite things is bundling up. At least the beginning of the cold weather I love it. It's so comfy and cozy. Plus, the snow is gorgeous and when I can I love being in it :).
Alright ladies, I hope you guys are well!!!
~Hannah
P.S. Ladies, please don't hesitate if you notice I'm missing posting to say something, because it's likely due to my forgetfulness!
There is not a whole lot happening with me at this moment in time, other than the ups and downs as you guys know how that goes. Right now I'm trying to set small goals for myself to complete bit by bit. I started to have a bit of a "pity party" today about not being to a place where I could work or attend college, but I started to come back out of it :). There is so much value in this time, the here and now. Sometimes the time feels wasted, but when you're living in light of eternity, times like this really aren't wasted (though, don't get me wrong, it's definitely possible to waste time!).
It snowed here today and I went out to play in it :) I was going to try to post a video but I'm having problems uploading it right now to youtube, but if you wanna see it, I'm going to try to post it to my youtube and blog (youtube: hannahsdysautonomic. blog: livingwithdysautonomia.blogspot.com) soon!
I hope to push myself to really enjoy the little things in life. I was doing well at that for a while, and I want to get back to that. Not measuring a day by how much I can do, but enjoying what I can do, even if it's very little. That is something so beneficial and beautiful to feel :).
Logan, I hope you can find a formula that really works for you! You've come so far with pushing and fighting to get your GI under control, keep at it!
question: What is your favorite thing about winter? The snow? Bundling up? Sitting by fireplaces? Lol.
I think one of my favorite things is bundling up. At least the beginning of the cold weather I love it. It's so comfy and cozy. Plus, the snow is gorgeous and when I can I love being in it :).
Alright ladies, I hope you guys are well!!!
~Hannah
P.S. Ladies, please don't hesitate if you notice I'm missing posting to say something, because it's likely due to my forgetfulness!
Subscribe to:
Posts (Atom)