Merry Christmas Guys!!

I hope you all had a wonderful Christmas! I wasn't feeling good most of the time, but I got to listen to a Christmas Eve teaching online from my church, pray, open presents with Hannah over skype:

And make cookies with my dad. (I got to taste a little frosting at least, lol)

Also I was really hoping for snow, since we haven't gotten much yet this year.

I got my wish! I even bundled up and went outside on the deck which was covered in snow for about 3 minutes. (Btw Hannah, your scarf looks wonderful with my coat! lol) I felt sick for hours afterwords, and kind of worn down the rest of the day, but it was worth it. Sometimes just for the sake of my sanity I need to go outside, even if its just for a few minutes, regardless of whether it makes me sick or not.
Isaiah 9:6 

For unto us a Child is born,
Unto us a Son is given;
And the government will be upon His shoulder.
And His name will be called
Wonderful, Counselor, Mighty God,
Everlasting Father, Prince of Peace.
 (NKJV) 

-Merry Christmas! 
-Logan 

Happy Christmas!

Hey lovelies! Merry, Merry Christmas! I have not been feeling well but my Christmas Eve has been lovely, and to our Aussie bloggers, I hope you guys enjoyed your Christmas! I got to see some of my extended family and that was amazing.

Otherwise I am hanging in there.  I wish I had more to post on :).  I wanted to post a picture but I'm having difficulty doing that from my ipad but it snowed on Christmas Eve, how amazing! White Christmas, Whohoo!

There were no questions but Cheyanne, I am glad you will get to walk around for your birthday, how amazing! I hope things improve with your GI issues and doctor situation!

Logan, keep hanging in there girl, I hope you really enjoy your Christmas and start feeling better <3 nbsp="nbsp" p="p">
To everyone, have a lovely day tomorrow!
~Hannah

December 19, 2012

Sorry I haven't posted the last couple of weeks, the last two Tuesdays have been busy, and by the end of the day I was just sick and exhausted. I'm not feeling very good right now either thanks to an unusually long period, so I'll keep this short.
My sensitivity to touch has been really bad on and off the last couple of weeks. I'm even resorting to wearing socks (which I hate) all the time just so that I can't feel the carpet under my feet. I can't stand the feeling of the carpet, or the towels, most of the blankets, my dad's sweatshirts, the reclining chair in the living room, or the hideous scratchy pillows that came with the couches. Half of the things in the house I can't touch, and its driving me insane!
My G-tube is still doing fine, although there is a lot of overgrowth of granulation tissue. We have an appt for later this week, hopefully my GI doctor can take care of it then. We need to make an appointment with my primary doctor too, because I got my period 2 weeks ago and it hasn't stopped yet.
I miss you guys. Hope to see some of you posting again. 

Logan

It's Cheyanne!

I am FINALLY posting. I kind of took a little break being that nobody else is really posting. I have been doing okay, I guess. Last week was beyond stressful with finals and such. My grades came in today and I got an A in my first college class! Yay!! My dysautonomia symptoms have been rather calm, except for a horrible episode I had a few nights ago. All of a sudden my blood pressure shot up along with my pulse. The highest I caught it was was 170. If it got any higher, my mom said I needed to go to the ER for fluids and tests. I felt like I was going to die to be completely honest. Hahaha! I had not had a bad episode since being on my heart medication.

My GI issues are still present. The last GI doctor I saw was a complete joke. At the beginning of the appointment he was telling me that I need a therapist and that I did not have gastroparesis and that had an eating disorder.  The funny thing is that his facility diagnosed me originally. Weird. Towards the end I needed an NJ tube! Lets just say that I never went back to see him. I don't know what changed his mind. I saw my PCP for an opinion on the NJ. Some labs were ran and they were all fine with the exception of my iron (it's always bad). That is only by the grace of God because I hardly eat anything. When I do, it usually isn't very nutritious. Anyways, I am losing more weight now so we scheduled an appointment with my GI doctor closer to home. I am wanting her to do a smart pill test. I have heard it is more accurate than the gastric emptying scan when diagnosing gastroparesis. I am kind of excited to see her because it has been awhile. On the other hand, I don't want to go.

Since the last time I posted I have gotten knee braces! They help tremendously. :) I am so happy. My birthday is coming up and I can actually do something that involved lots of walking. The orthopedist said that I am hyperextending my knees and aggravating all of the tendons in that area. He ordered the braces to help with that. I am also in the process of getting fitted for ring splints. The joints in my fingers are not wanting to stay in place.

Logan: I am happy to read that you are liking your tube and that the surgery did not worsen any other symptoms!

Hannah: How is the school going? Learning Hebrew sounds amazing! I wish you could teach me to crochet. :) It seems like fun to do when feeling ill. I am terrible when it comes to crafty things. How do you manage Christmas shopping with your Dys? My dysautonomia usually doesn't affect me all that much (except for fatigue) when shopping (most of the time lol). I make sure I am prepared with fluids and compression hose because heart problems always tend to come out of the blue for me. Joint pain and other EDS stuff is the big thing for me that makes shopping hard.